Tag Archives: disability

I wrote this as I sat and took in the views my second last day in Vancouver from the seat of my rental scooter. Funny to read it now as I sit restless on my couch, scooterless, and with increased expectations for accessibility that I picked up from the other cities I visited, with their ramps and conversations and elevators and signage.

How many cigarettes does it take to get addicted? I’m curious.
How many days in a new city before you fall in love with it? We’ll see.
How many afternoons spent in the wide spaces til like I feel like myself again, til I feel clear, without a pitied gaze, half internalized, half resisting, have internalized.
How can I convince myself that I don’t need to stay and fight, that I can be free.
Waiting for the broken city to release me
Waiting for the broken city to release me

Voting rights suppressed by stairwells

As many know, not all voting stations are accessible in Quebec.

People with diverse mobility are being fucked in their voting rights. The anglos and newcomers will understand the unjustness of having to prepare to vote, the need to take precautions to avoid barriers to voting. What if someone wants to vote strategically after hearing the results of the latest poll rather than vote a week in advance? What if people don’t have the energy to research if their polling station is accessible? What if they’re disorganized and show up on the day expecting to have their right to vote and find out that it got thrown down a flight of stairs and smashed at the foot of their wheelchair?

A message from the chief electoral officer:

“Please note that… on polling day, polling stations should be easily accessible but it is possible that some of them aren’t. As a result, people with difficulty moving about should check in advance with their returning officer or by contacting our Information Centre…

If it turns out that your poll is not available on April 7, you still have the possibility to exercise your right to vote at the office of the returning officer on April 1 and 2 from 9 am to 9 pm and on April 3 from 9 am to 2 pm. Locations used for this vote are accessible to people with reduced mobility.”

The fact that they refer to people as ‘having difficulty moving’ is insulting. The difficulty is posed by their choice to place voting stations up a flight of stairs. Having wheels is fucking liberating, the electoral office is the oppressive thing in this equation.

They say ‘you still have the right to vote,’ like aren’t we benevolent in offering you a shitty alternative and making you feel like it is your defective bodies that are responsible for a restriction of your rights.

I’m angry about this. It makes me either want to say fuck your election or vote really hard even if it is a pain in my ass.

Take your time my dear, he said, as I struggled to pull the one side of my coat with holes to meet the side with the buttons. I didn’t realize it but the waitors’ hasty movements and hurried closing activities like slamming bar stools on benches upside down, and whipping their ponytails back and forth were making me rush to get out of the hippy cafe bar we found after a long day of travelling from the island to the mainland. There’s this phrase I’ve been saying a lot lately: on se décalice. That’s what I was doing. J was already on his scooter, ready to roll to catch the second-last sky train; we didn’t want to risk going for the last one, and I felt like once again I was making him wait, I was taking too long to do everything. I was feeling rushed and impatient with myself. These are not new feelings nor are they sparse. I have always found myself around faster moving people with quicker paced schedules than I have, and have quite often felt like I’m not measuring up. Like I’m not walking fast enough or working fast enough or eating fast enough or getting out of the bathroom fast enough or changing fast enough after going swimming with childhood friends. I had this thought today as we were having our breakfast in the hotel lobby, after J said I’m almost ready to go because he thought I was anxious to leave, but I was just enjoying my coffee, waiting for the rain to pass, that sometimes I prefer to be alone not because I don’t want company but because I don’t want to have to explain myself or say I’m coming, almost ready. Its simpler to go alone. Easier to follow my own rhythm when I’m the only one playing the song.

The thing about the Underwater City is that its as much about people as it is ramps or wheels or pave-jobs. Its about patience and laughing as you race down the sidewalks, mocking the bi-pedals for being so slow. Its about figuring out how to fit two scooters in an elevator, on a bus, how to hold the door open for each other. Its about J giving me lifts on the ferry to look at the sunset, and me grabbing something from a tight space that would be a pain in the ass for him to drive his scooter into. Not that he wouldn’t be able to do it, or that he would complain at all. Its about asking ça va, when I am clearly upset about something, its about being there for each other and finding a pub to eat and dance in.

Its about the scientist giving the writer space to sit on the pier with my cell phone writing, texting myself new bits, and the writer trying to give the scientist an estimated time of how long it will take to get her idea down on a semi-used napkin in a bar. Its about not wanting anything in return after petting my hair when I am overwhelmed with emotion from the broad uncertainty I’m swimming in, being treated so well in public and seeing the vast blue-greys of sky meeting ocean and mountains.

As we both sat on the seats of the skytrain, our scooters rocking with the turns, patiently waiting to carry us when we arrived at our stop, I said I wished I had more crip friends when I was growing up. Its comfortable and well-paced and not frustrated with me. We’re good to travel together. He gets me coffee when I’m sleepy, I make us pose for pictures. He said its true, quand tu voyage avec les gens bi-peds il comprennent pas quand tu cherche un ascenseur ou que tu prends plus de temps pour s’habiller. They are shocked when elevators aren’t as obviously located as escalators or stairs and don’t seem to understand that sometimes you need to sit there kind of groaning on a ferry seat with your legs spread in the air flashing the seagulls flying on the wind currents outside the boat window to recuperate before you go on. I’m so happy J joined me, took me to Stanley Park, and taught me how to get on the bus in a scooter without loosing my shit. We’re closer with each other now after having travelled to three different cities, across mountain ranges and prairie, across countless rivers and between tiny islands in the pacific ocean. We’re closer and I feel closer to finding the Underwater City. As I’ve jokingly been asking him repeatedly over the course of our travels… are we there yet?

Cars, mothers, dental work and drowsiness-inducing painkillers: on mutual self-care

The thing about being in a car-centric place is that you can’t take your mum to a doctor’s appointment if you don’t drive, and she will insist on driving. If you were in your natural habitat, you would hail a cab, and take it home. There would be no option for her to drive after being put under, operated on, and having three different types of painkillers. We had gotten up early, rushed to this hotel on the south side of Edmonton to catch the Red Arrow bus to Calgary. She was having dental surgery there. And then we got back on the Red Arrow bus back to Edmonton, that same day. And she insisted on driving home after we got off the bus. It was a lot.

She’s always telling me: just take a cab, if your knee’s hurting just take a cab, its not worth it. And that’s what I’m learning to do, not push myself, not do a marathon worth of activity after a surgery, or even on a regular day. I’m learning to take care of myself. Always, not just when I have time or can afford it. I have the luxury, when I can’t afford it, of a credit card. I am not forced to work a job that disables me. I felt frustrated that she wouldn’t let me help her, not even carry my own backpack, let alone carry her bag. To me self care is about accepting help when you need it and giving help when someone needs it more, if you can. But she wouldn’t, she said, “birdie I’m fine. Tell you what if you notice anything unsafe after one block I’ll pull over and call a cab.”

The sticker on the anti-inflammatory she just took flashes in front of my eyes: may cause dizziness or drowsiness. Merde I thought, I’m going to rip her face off. So I stormed into the hotel the bus dropped us off at, that her car was parked at, and looked for the bathroom. I only found the men’s and didn’t want to walk farther cause I didn’t have my cane and my leg was hurting so I went and spoke to myself in the mirror of the men’s. Gender is silly anyways. I wanted to hold my ground but didn’t want to force her out of her car, motor running, bags packed in and all. I wanted her to accept that I might have a reasonable point, along with all the nurses we spoke to who said, no driving or anything strenuous. But she was ok, she was fine. She is a bull-headed, sweet spoken lion woman, and will not back down from her belief that she can and will do everything all at once. Won’t take T3s, won’t ask a friend for a ride, won’t stay the night in Calgary, won’t even let me walk her to the bathroom. Because that would mean… what? That she, along with everyone else in the world, needs support and help sometimes? That her self-image and the image she puts out in the world will be degraded? Does she see needing help as a degradation of her self image, her pride, her confidence? Does she see it as fine for others to need help but not herself? How does that make me feel, when I am openly working on accepting help when I need it. And why does she only accept help when she is at the complete end of the possibility of doing something herself? Am I talking about my mother or myself at this point?

Its a sensitive subject for me cause I’m trying so hard to not be ableist towards myself. And I forget that when I come home, after being away and changing my perspectives, that I can’t expect others to receive that perspective through some transmissive process as soon as my plane lands and walker wheels hit the dry Edmonton ground. I can’t get mad at someone for operating how she always does, frustrated that she’s more concerned with my arthritis pain than the two incisions in her own mouth. I can try and make her see that its important to take of herself too, and that means resting sometimes. I can try and lead by example, by explanation, by sharing my experiences with coming home and putting a heat pad on my legs, or leaving my house messy or not pushing myself in the pool even though I want to swim soo fast and forever. But I can’t just get mad and slam doors. Damn I said to the mirror in the men’s hotel washroom with the potpourri and urinal scent, how stubborn and bull-headed was I this summer when she was helping me heal my broken leg?image

All the gear I need: recording and aquatic! All set to head out bright and early tomorrow morning on my underwater adventure!!! Stay tuned for updates from the streetcar in Toronto… I know they let dogs on, will they help a bitch with a walker out?

Ok. You’re looking at what I solemnly promise to do every day that I’m traveling and prepping for the Underwater City Doc…

blog on this here Tumblr page!!

Follow me so you can keep up to date with the project and see more photos of my computer screen in front of various scenes:)

[one-handed typing on my laptop, screen shot of my blog page, in front of overflowing bookshelf]