Tag Archives: criplife

Where have I beeen?

Recently, my posts have been short and mostly about photos of silly things in Montreal’s architecture. Or various cats in and around various mobility devices. While fun, I feel I need to tell you where I’ve been and what is goinnn onnn in the Underwater City!

Well, I’ve been hustling. Hardcore.

I applied for some funding to produce the UWC Zine I, and got it! Its going to be a comparison of aspects of accessibility in five regions of the country, based on interviews. I’m setting up interviews and writing for that. Stoked! You have to wait!

I’ve been writing an article for the RAPLIQ bulletin, a really awesome organization here in Mtl who fight for disability justice. They are the royalty of disability activism. My article was translated by a fabulous editor and translator, and will be published next week. You have to wait for that toooo.

A poem that I’ve shared with you before is set to be published in the À qui la ville zine, produced by an awesome crew dedicated to a more inclusive Mtl. Stoked to be a part of this. But, you know the drill, have to waaiiiit!

I’ve been looking for work, to fund my unhealthy writing habit. No just kidding, I’ve been looking for part time work with youth. To get me away from the computer and back with kiddies- by far the best people ever.

And what about the documentary??
My lovely friend Lucy and I are preparing to shoot a promo video based in Mtl and integrating some of the footage from the trip across western Canada J and I took a few months ago. Its happening!

A painting? What painting?
Glad you asked! Said lovely friend Lucy has been working her buns off creating a beautiful work of art to accompany my poem in À qui la ville, and to perhaps, if she lets me, be used in other aspects of this ever-growing project!

So that’s my story. I will share things with you as they come out, and until then enjoy the cat photos and pictures of banks and other unfortunate places. And keep on fighting that ableism!

Anybody else find this insulting? Crips at back much? Also, with all the bs we deal with daily in mtl, we need easy access to da liquor!! Hehe

This is what a first class scooter looks like! Turns out the wheeled device spot on the Montreal-Ottawa-Toronto train is in fiirrrst classs. So here I am baby. It was easy to get on with the scoot, Via Rail staff were chill and helpful. It makes such a positive difference when people are friendly!

Here amongst the business people and independently wealthy there are curtains on the windows, newspapers for all, and a man with a liquor cart. I don’t know why newspapers are a sign of upper society, I mean, the news is pretty much everywhere now. But ahhh the luxury of flipping through! Never thought you’d hear me say I like class systems eh? Well class tastes pretty good when it comes in the form of a complimentary 4pm gin and tonic! Hahaaa (evil capitalist laughter).

But seriously, this train is much newer than the one J and I took from Edmonton to Vancouver. And it is, unlike that one, rather accessible. There’s even a giganto bathroom. Too bad the western train is so filled with steps and narrow aisles.. Seems like the touristic (Rocky Mountain line) would have more of an emphasis on access. But maybe just more people travel on the central Canadian lines so they prioritized making them accessible first. Well… Something to ask my new Via Rail employee friends.

Now, if you’ll excuse me, I have some gin to drink and polite elderly men to make small talk with.

Don’t Touch My Scooter

I’m going to tell you a story about a protest I went to two days ago in favour of accessible transit. I’m going to tell you a story of someone who tried to steer my moving scooter while I was driving it during the demo because I was blocking a police car. I’m going to tell you why I was doing this, and the reasons why it is not ok to touch someone’s mobility device. I’m going to tell you why I think it is important to take up public space and assert our right to protest, and i’m going to tell you why i believe in diversity; of tactics, of bodies, of realities and the wisdoms that come from different experiences; why I believe diversity in a movement strengthens it.

But first…

Don’t touch my scooter.
ok. bottom line, don’t touch my scooter
not when its moving, not when its still, not when i’m in it, or not when I’m far away. Don’t touch my scooter.
All body politics aside, all body politics that say that a scooter or any other mobility device is an extension of my body, all those politics aside, don’t touch my scooter.

Not when I’m rolling along as part of a demonstration. Never touch my scooter.
All discussions of political tactics aside, the type of discussions that make you feel that its ok for your particular tactics to trump mine because they happen to fall in line with the law, all those discussions aside, do not touch my scooter.

Not when I am the only one on the left side of the street, the side farthest away from the majority of people demonstrating, and being intimidated and approached by police on two sides. Not then, not ever. Never touch my scooter.

I know the police are coming, I can see their flashing lights in my rear view mirror, I can see the cop coming towards me on his feet, and this is a personal and political choice that I am going to be true to.

I have thought long and hard for many years through many experiences, through many interviews with a multitude of people with diverse tactics, I have thought through some experiences in which I too, attempted to quell someone’s political voice and lived years to regret it. But have taken the opportunity to learn from that experience and grow as a political person. I have taken years and I have researched and I have written about diversity of tactics in social movements. And I have come to the conclusion that I choose to block cop cars when I am part of a demo.

The first time I heard the term lateral violence, I didn’t know what it meant, and it was being hurled at me from the lips of a very angry woman.
I was standing on the steps of one of those iconic Montreal statues trying to wrap up the speech a young woman was giving at a demonstration I helped organize. She was putting forward an idea that people in the group did not agree with and there were mumblings of ‘what should we do’, and ‘people are getting uncomfortable’ and ‘someone should go up there’. So I went. I felt if no one else is going to, I will. I tried to silence her because I and the group and seemingly, the majority of the crowd were not comfortable with what she stood for. I felt i had some authority over what was said because i was part of the organizing group.

I thought in my impulsive decision to go up there that it would just seem like I was facilitating the speakers and that it was time for the next speaker.
It didn’t seem like that.

It seemed like a young white woman of English and Afrikaans heritage was telling a young Navaho woman to step off the speaking pedestal. It seemed like an outsider, someone from the colonial group was telling someone whose people have been told how to act, what to say, what language to say it in, what ceremonies are illegal, where they can stand, live and build, it looked like that she was being told where to stand and what to say.
It looked like that because it was like that.
An act that I thought was relatively benign was violent to the person on the receiving end.
I was ignorant and unaware of the power dynamics and history of appropriation that I was a part of.
I was young.
I was not given any benefit of any doubt.

Let me tell you what I learned from this uncomfortable night:

All people in a movement, supporters, people directly affected by the oppression they’re resisting, we all have a place in fighting injustice. Movements are for everyone who wants to fight injustice. However, the voices that should be amplified above others are those of the people directly affected. We need to hear from the people being squeezed. Out of their territories, out of their ways of being, out of public spaces, blocked from transit, kept in poverty, institutionalized. These are the people who have the experiences that we need to build our movements on, they are the visceral knowledge holders.

I also learned that no one should belittle anyone else. Belittlement, dehumanization, these are the things we’re trying to resist; lets build an alternative to power structures that privileges some voices and perspectives over others.

Most importantly, I learnt the value of believing that no one knows what’s better for another person. We are responsible for ourselves, we are autonomous, agency is critical. I find this equally important in the anti-colonial movement as the anti-ableism movement, as many of us have been controlled our whole lives, physically, emotionally, medically.

Agency looks different for different people, maybe it looks like having the space to ask to be fed, maybe it sounds like ‘can you carry my purse, its too heavy’, maybe its taking a rest when everyone else keeps going. Maybe it feels like being guided at the right pace, being supported financially, has the motion of a flurry of words spelled into the air by diligent fingers. Maybe it smells like no one’s wearing perfume so neurodivergent people’s senses don’t feel sick. Maybe it looks like a bright shiny red scooter going at the pace and in the direction that its driver feels is right. Maybe it resembles these things and seven million other things. However agency manifests, it always looks like people making decisions for themselves or having final say in what happens in their lives, where they go, how they get there, and with whom they go. Agency looks and feels like choice.

I felt an overstepping onto my agency when someone attempted to redirect my scooter.
I felt my agency being pushed, belittled, edged over to the sidewalk, by the police cars that wanted to pass to open up a lane of traffic or make the demo take up less public space or whatever the reason they wanted me to move over.

So why didn’t I just move over for the cop car?

It strays a little from the whole don’t touch my scooter angle, and I don’t feel like I need to justify my political choices. But in the spirit of dialogue, I’ll tell you the story of why I didn’t want to scoot the hell over.
I feel the police exist to maintain the status quo. I felt their presence at the march was to diminish the amount of space we took up, to restrict our actions. As someone who has spent her life having her actions altered, splinted, redirected, this affects me in a visceral way. And I find it important to resist bodily control by the state that is at once personal, emotional and highly political.
What brought me out in the pouring rain to be part of a demonstration was the desire to break out of the status quo. The status quo is the thing that keeps us out of buildings, that passes laws against making buildings accessible because it would cost them aesthetic continuity. The thing that keeps people with disabilities in poverty and often dependent on abusive systems for support. The status quo is what keeps us subjugated in Quebec society. I came out in the pouring rain to speak out against that status quo and its oppressive force on my body and life. And of those of the people whom I love and of those who I don’t know.
I came out in the pouring rain to express my political opinion. And to manifest my political ideas and personal desires for autonomy into physical action.

The police were there to control the demo, to keep the peace/ quiet.
The peace/ quiet, in my opinion, is what made onlookers check us out and think, ‘oh that’s cute, the people in wheelchairs are rolling around on the street’.
In this ableist and inflexible environment, in which having 7 elevators out of 68 in the metro system is seen by many as ‘they’re trying, give them a break’, I feel my role in this movement is to make noise, take up space, not to keep the peace. Because for me, peace and quiet sounds a lot like the silent isolation a snow bank muffling outside sounds after ploughs have carelessly barricaded the entrance of a supposedly accessible building; the silent snowy night outside the pool when a person has parked in a handicapped spot without a second thought, that person being a parking enforcement officer; the echoing silence of no one saying a word, no feet shuffling when someone who clearly needs a seat on the bus gets on, scans the seats and exhales and holds on tight, hoping there aren’t too many sharp turns.

The tactics and role I choose to take are to be big, with my comrades, take up space and be seen, on our terms.
Not to feel pushed, at risk, like I so often do in public spaces.
I did not come out in the pouring rain to feel pressured. Like I should shrink.
Not by the police, and especially not by someone who has built a name for herself as a member of the disability community, who’s work is based on the tenets of independence, autonomy, agency and choice, and who took the choice to try and alter my path.

The police were there to escort the demo. The organizers alerted them of the trajectory of the march. That was completely in the realm of their agency to do so. Everyone has different political tactics for different reasons based on their experiences. Its probable that the organizers wanted demonstrators to be safe from traffic, from getting ticketed if the demo had been declared illegal. I respect people’s political choices, even if I disagree with them. It is not my right to impose my way of demonstrating on anyone else. That is sometimes hard, especially when we are convinced that we are right. But this movement is based on diversity and respect of difference. To impose our will on others would go directly against that most basic foundation of the anti-ableism movement.

I ask for that respect to be returned back to me.

Respecting people’s diversity of tactics, the only hope that I have is that people have thought their chosen tactics through, thought critically about them and not just based them on the fact that certain things are legal and certain things are not legal; certain things are part of the status quo and certain things are not.

I hope everyone at the demo on Tuesday thought critically about the tactics they were employing and didn’t just follow the leadership of people holding a banner.
I hope that we can reinforce each other’s political desires and be in solidarity to build a movement even though its clear we disagree on our use of tactics.
I hope that we can be together at a number of demonstrations, expressing ourselves differently.
I hope that we can respect each other’s choices in the actions we take, the different paths we go down.
The more angles and approaches covered in a movement, the more chances of a wide-reaching success.

But most of all, I hope that you never, ever touch my scooter again.
It is a violation and shows a lack of respect for my bodily autonomy. Like you knew what was better for me than I did. Like you felt entitled or responsible to take charge over my body, my wheels, that symbol of freedom that carries me where I want to go, to so many places I have not been able to go the last few years: a park, a long walk, wandering up hills, around and around. That practical liberation that means that my actions are not dictated by pain.
I hope that you didn’t feel entitled to touch my scooter because you are friends with the organizers. I hope you didn’t feel entitled to do so because you were walking and I was not.
I wonder, would you have taken my cane out from under me? Steered my walker in another direction? Or was it something about the fact that I was seated and you were standing that made you feel more authority over my body?
But all these other questions aside, I wonder if you’re reflecting on what happened Tuesday in the streets between us, and whether you’re open to having a dialogue about it.
I wonder if you’re questioning your actions?

I wonder if this is the first time you’ve heard the term lateral violence?

I wonder these things as I also wonder at the power of a single act, a single gesture that carries with it the statement that you feel authority over Where. I. Go.
A single act that could have caused us both harm.
A physical act that read plainly as a book in my hands that you felt power over me and did not hesitate to try and exert it.
I wonder at the strength of a single gesture.
And I wonder if the police officers sitting behind me in their warm van perhaps would too, take note of the single act of me not following their demands.
I wonder if that could have had an effect on the onlookers driving by on Renee Levesque, or the people trying to cross the street and not being able to because I was holding up traffic. For one half hour on a tuesday afternoon, drivers, pedestrians who don’t normally face systemic barriers in their commutes other than potholes and road closures, face a seemingly benign barrier to getting where they need to go. For one half hour period, some people, who don’t have to consider it every time they leave their homes, were faced with an unexpected blockage of their daily routine, a phenomenon that people with disabilities, unfortunately have come to expect on a daily basis.
I wonder if that too would have had an effect in addition to the whistles being blown and the placards being held and the chants being chanted. I wonder if all of the actions that we take can accumulate to create some sort of change. To create a culture of resistance not a culture of compliance. With the end goal of gaining true autonomy and choice.
I wonder if we can work together enough to make that happen.

But more than that, more than anything else, I wonder if you’ll remember these words:
Never touch my scooter. Ever. Not when its moving, not when its still, not when I’m in it, or not when I’m far away.
Don’t touch my scooter. Ever.
Don’t touch. My scooter.
Never. Touch. My scooter.

I wrote this as I sat and took in the views my second last day in Vancouver from the seat of my rental scooter. Funny to read it now as I sit restless on my couch, scooterless, and with increased expectations for accessibility that I picked up from the other cities I visited, with their ramps and conversations and elevators and signage.

How many cigarettes does it take to get addicted? I’m curious.
How many days in a new city before you fall in love with it? We’ll see.
How many afternoons spent in the wide spaces til like I feel like myself again, til I feel clear, without a pitied gaze, half internalized, half resisting, have internalized.
How can I convince myself that I don’t need to stay and fight, that I can be free.
Waiting for the broken city to release me
Waiting for the broken city to release me

Take your time my dear, he said, as I struggled to pull the one side of my coat with holes to meet the side with the buttons. I didn’t realize it but the waitors’ hasty movements and hurried closing activities like slamming bar stools on benches upside down, and whipping their ponytails back and forth were making me rush to get out of the hippy cafe bar we found after a long day of travelling from the island to the mainland. There’s this phrase I’ve been saying a lot lately: on se décalice. That’s what I was doing. J was already on his scooter, ready to roll to catch the second-last sky train; we didn’t want to risk going for the last one, and I felt like once again I was making him wait, I was taking too long to do everything. I was feeling rushed and impatient with myself. These are not new feelings nor are they sparse. I have always found myself around faster moving people with quicker paced schedules than I have, and have quite often felt like I’m not measuring up. Like I’m not walking fast enough or working fast enough or eating fast enough or getting out of the bathroom fast enough or changing fast enough after going swimming with childhood friends. I had this thought today as we were having our breakfast in the hotel lobby, after J said I’m almost ready to go because he thought I was anxious to leave, but I was just enjoying my coffee, waiting for the rain to pass, that sometimes I prefer to be alone not because I don’t want company but because I don’t want to have to explain myself or say I’m coming, almost ready. Its simpler to go alone. Easier to follow my own rhythm when I’m the only one playing the song.

The thing about the Underwater City is that its as much about people as it is ramps or wheels or pave-jobs. Its about patience and laughing as you race down the sidewalks, mocking the bi-pedals for being so slow. Its about figuring out how to fit two scooters in an elevator, on a bus, how to hold the door open for each other. Its about J giving me lifts on the ferry to look at the sunset, and me grabbing something from a tight space that would be a pain in the ass for him to drive his scooter into. Not that he wouldn’t be able to do it, or that he would complain at all. Its about asking ça va, when I am clearly upset about something, its about being there for each other and finding a pub to eat and dance in.

Its about the scientist giving the writer space to sit on the pier with my cell phone writing, texting myself new bits, and the writer trying to give the scientist an estimated time of how long it will take to get her idea down on a semi-used napkin in a bar. Its about not wanting anything in return after petting my hair when I am overwhelmed with emotion from the broad uncertainty I’m swimming in, being treated so well in public and seeing the vast blue-greys of sky meeting ocean and mountains.

As we both sat on the seats of the skytrain, our scooters rocking with the turns, patiently waiting to carry us when we arrived at our stop, I said I wished I had more crip friends when I was growing up. Its comfortable and well-paced and not frustrated with me. We’re good to travel together. He gets me coffee when I’m sleepy, I make us pose for pictures. He said its true, quand tu voyage avec les gens bi-peds il comprennent pas quand tu cherche un ascenseur ou que tu prends plus de temps pour s’habiller. They are shocked when elevators aren’t as obviously located as escalators or stairs and don’t seem to understand that sometimes you need to sit there kind of groaning on a ferry seat with your legs spread in the air flashing the seagulls flying on the wind currents outside the boat window to recuperate before you go on. I’m so happy J joined me, took me to Stanley Park, and taught me how to get on the bus in a scooter without loosing my shit. We’re closer with each other now after having travelled to three different cities, across mountain ranges and prairie, across countless rivers and between tiny islands in the pacific ocean. We’re closer and I feel closer to finding the Underwater City. As I’ve jokingly been asking him repeatedly over the course of our travels… are we there yet?

Mud, men in onesies and wanting to stay in Edmonton

Normally when I come back to edmonton i get an itching to leave after about 5 days. I have the feeling that I’m coming back to Edmonton but not home to edmonton. I judge the wide roads made for the wide cars and the people who don’t care about fashion even though I don’t care about fashion. I do this thing in my head that elevates montreal in comparison, perhaps in part in order to feel i have an identity separate from the place I grew up, something my own. Only I knew what the best bagels tasted like. Only i knew the wind of rushing cars on Saint Laurent after dancing. Only i knew the view from the mountain is way better than the view from the stade d’olypique. But I also did that elevation head thing to convince myself that i love Montreal. That it is a loveable place. Yes, I had to convince myself.

Today as I prepared to leave edmonton I felt sad. Not like i was home sad, but that its a hell of a lot more home like than montreal. The broken city. I was thinking about my washer and dryer. I love those things. But I am not itching to go back and be their master. My apartment. So cozy. Orange. But I an not itching. My people, the real reason I stay, and the truly loveable side of the city, they call me and i miss them. But no itching yet. (Except for that caused by dog hair.)

While my friend Julien and i were both riding along downtown on his scooter, sharing the seat and chuckling about how squished we were, we got no venomous looks from passers by. Or rather the people we were passing by. Damn that thing goes fast. It is a peculiar sight to see i’n sure, but i was done with walking and he was a good comrade and shared his ride. As we went down the sidewalk to our first Underwater City Podcast interview of the day the front wheel got stuck in some serious springtime Alberta mud. I got off and chilled while J tried to get er out. It was stuck gooood. Before i had time to ask him, a seemingly seven foot tall man wearing a blue jumpsuit workman’s uniform ran across the street, right up to the rear end of the scooter, heaved it up as though it weighed no more than twenty pounds, said nothing, whipped around to the front of the thing, hauled it up again, i’m pretty sire with one hand, and then all he said was ‘ya you gotta be careful of where you go around here.’ No condescending tone, no look at me I’m an amazing fucking person because i helped a fellow pedestrian out, no you don’t know what you’re doing you helpless bunch of crips. None of that. As we drive away J said, ‘was that a redneck? I like rednecks.’ Ha! The whole thing was fast and surprising and felt so real. Like that guy didn’t want us out in the snowstorm any longer than we had to be he and he was going to do what he could to help out. Basic, rare, and left me feeling good and helped and seen in the space we were sharing with that seven foot tall onesie man.

I used to see mainly negative sides of the city when i visited. The excess, the box stores, the voting trends. I judged, i tried to feel more cosmopolitan, unique, cultured. But lets be honest, culture don’t mean a whole hell of a lot if it looks at you stuck in a mud pool, looks away and walks on.

So tonight as I lie in bed, shivering beneath my blankets, telling myself i’m tired and need to sleep soon to catch the accessible taxi that was really easy to reserve in five and a half hours, I’m not itching to leave, I’m feeling sad to be leaving edmonton. Daily life things have been relatively easy the past week. And what hasn’t been easy, like crossing big streets by foot and catching busses, has at least been pleasant. Bus drivers are nice, people are patient, there’s space between those big roads to breathe. I have not felt judged or discriminated against in my urban wanderings. And that is definitely something to write home about.

Traveling with my feet up

Hey Underwater Creatures,

When planning my trip I wish I had taken into consideration the amount of time I have been resting my bod at home lately. Usually if I do something strenuous one day, I need a recoup day after to chill and do sitting things like writing or working on editing gigs or radio projects. Or listening to the radio. It works out pretty well. But while planning my time here in Edmonton I was kind of basing my activity level on how I used to operate when I traveled, which involved more walking and less resting.

Luckily I have gotten better at planning transit/ snagging rides, and have lovely friends and family here who like to transport me, so I certainly have not been stranded. But I feel a bit rushed in getting all that I would like to done here, meeting all the amazing queer crip-folk working to make E-town more accessible.

They have this fly dance party crew called Qmunity, who get together and dance and build community and be all hot. Next time I roll through I should certainly try and make one of these!!

Well, lessons learned. I have more time in Vancouver planned, and a scooter rental in the works, so I’m sure that will help. And then its joy-ride central. Yeeeee-Hhaaaawwww!!!!

All the gear I need: recording and aquatic! All set to head out bright and early tomorrow morning on my underwater adventure!!! Stay tuned for updates from the streetcar in Toronto… I know they let dogs on, will they help a bitch with a walker out?